Ulcerative Colitis: Social Relationships and Dating
Your friendships enrich your life. Theyâre good for your health, too. Studies show that people who have good friends and good relationships are healthier, happier and may live longer. Thatâs why maintaining your social life might be the perfect supplement to your ulcerative colitis care.
âWhether you have IBD or not, social isolation is not healthy for human beings,â says Marci Reiss, a licensed clinical social worker and founder and president of the IBD Support Foundation.
During a flare, you might feel like hiding at home, but ulcerative colitis doesnât mean your social life and relationships have to end. Managing your friendships while managing your condition is a balancing act that you can learn.
Youâre close with your friends, so it might help to tell them about your condition. That doesnât mean you have to tell everyone, and you donât have to tell them everything.
âBathroom talk — diarrhea, urgency — is not easy to share, and no one is ever coached in how to explain this to people,â Reiss says. Her advice? Carefully choose whom you tell and exactly what you tell them.
You might feel that telling your friends you have ulcerative colitis is the same as telling them you have chronic diarrhea, but, says Reiss, âpeople donât know what you donât tell them.â You have all the control in how much you choose to share. âYou can put on a happy face and say, âIâve got this stomach thing that acts up once in a while, and Iâm just not up for going out tonight.ââ
With your most trusted friends, you might choose to share more. It could bring just the support you need. When Susie Janowski of Pocatello, ID, told her friends about her ulcerative colitis, she got an outpouring of support. âAnything you could do for a person, they did for me,â she said. âIt makes you realize youâre not alone.â
If youâre not ready to talk about your condition with your friends, find someone you can share with. Support groups for ulcerative colitis and IBD are readily available on social media and in real life. âItâs amazingly therapeutic,â says Reiss. Sometimes group members get so comfortable and enjoy sharing so much, she says, âitâs like a comedy show in our support group.â
Janowski, a self-described âsocial butterfly,â is a co-leader of her online support network. âThere are a lot of good people in those groups. Theyâre very supportive; they try to help you out and share their experiences so that you can know what to expect with colitis.â
A word of caution about support groups: They should be supported by a health professional. âIâve heard people in support groups convince others to stop meds, start meds, try this diet instead, definitely have surgery, or definitely not have surgery,â Reiss says. âThe firsthand experience of another person whoâs lived it is powerful, but it can be harmful.â
Telling your oldest, dearest friend that you have ulcerative colitis is one thing. Sharing that information with a boyfriend of girlfriend might feel like quite another. âIf itâs someone you want to pursue a relationship with, youâll need to tell them, because you need someone who can support you through this,â says Reiss.
Itâs probably not the kind of thing you want to discuss on a first date, but you donât want to save it till after the engagement either.
âItâs probably sometime after the third date, but long before things become serious,â Reiss says. âThereâs a point where itâs a meaningful enough relationship that you need to share because this is a big part of your life, but at the same time youâre not so far into the relationship that the listener is going to feel betrayed that you withheld something so big.â
Reiss recommends not going into too much detail at the beginning. Share what you need to share at first and answer any questions they have. You can offer more details as things progress.
âIf somebody bolts because they canât handle it, yes, thatâs painful,â Reiss says, âbut consider it a blessing because that wasnât the right person for you.â
Once youâve shared with your friends what youâre facing, planning social activities becomes more about logistics and less about trying to lie low. These tips might help:
- Be in control of when you arrive and when you leave. You donât want to rely on others for a ride home if you need to get out in a hurry.
- Choose locations where you know youâll have a clean, comfortable bathroom if you need it.
- Scope out bathroom locations when you arrive.
- Carry flushable wipes with you.
- Ask your doctor about over-the-counter medications, such as anti-diarrheals, anti-gas medications, or digestive aids, that you can take before any canât-be-missed social activities.
- If you canât go out, but want to see your friends, ask them to come to you.
Ulcerative colitis may make your social life more challenging, but it shouldnât make it feel impossible. If it does, talk to your doctor about how well your treatment is working for you.
As you venture back out into the social world, Reiss recommends that you remember this: âYou are so much more than your disease.â